My name is Abbey and I’m a young adult navigating life with a rare disease. After reading “Daring Greatly” by Brene Brown, I was inspired to embrace my vulnerability and begin a project of writing and sharing my story of life with Ehlers-Danlos Syndrome, Classical Type. I’ve lived quietly with EDS for 14 years, but I’m tired of hiding this huge aspect of my life. It’s time for me to share my story.
I hope to gain personal clarity through this project, but also to give inspiration and become an active member of the chronic illness online community. I’ve gained a lot of knowledge and reassurance through various chronic illness communities, so now I’m hoping to give back and help others on the journey of chronic illness or rare disease.
Thanks for reading!