Daring Greatly

Daring Greatly

I’ve been at a loss for words to write about my experience with the Chicago Marathon. I’ve written, re-written, and spewed incoherent sentences onto many pages. Nothing felt right. I felt like a failure for not reaching the finish line and I couldn’t find an honest way to write this. I wanted to be okay with the experience and inspire many with a profound piece. I wanted to talk about all the awesome that happened during the race, but forget about…

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Freedom of Adapting

Freedom of Adapting

In 7 days, I am running a marathon. 26.2 miles. My first. An endeavor I have been working towards for months. I’ve been visualizing this finish line for years, and am excited to finally make it happen. When picturing this moment, however, never once was I crossing I finish line in the manner I will be next weekend. I will be crossing the finish line in Chicago with the support of two forearm crutches. And I am okay with this….

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In This Moment

In This Moment

Life has been a whirlwind of activity lately, and since May I’ve: – graduated from college – ran a half-marathon with MDA Team Momentum – moved back to my hometown – spent a week volunteering at MDA Summer Camp – started two new part-time jobs working with youth summer recreation programs. EDS has also been along for the ride on this journey, and caused some excitement of its own in my life.  Since May I’ve also : – used a…

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Pain with a Purpose

Pain with a Purpose

It’s probably no surprise that running is not usually a recommended activity for someone with the frequent injuries and joint issues associated with Ehlers-Danlos Syndrome.  It seems to confuse a lot of people that I can have chronic pain and other EDS symptoms, yet still be able to run.  Since I recently started training for my third half-marathon, I thought this would be a good time to explain why I choose to run despite any extra pain it may bring…

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A Letter to Myself on the Day of Diagnosis

A Letter to Myself on the Day of Diagnosis

Dear little Abbey, I don’t remember when you’ll understand what it means to have Ehlers-Danlos Syndrome, but at age 7 you already know the ways you are different.  Your first knee dislocation was scary, but you didn’t know it wasn’t a normal injury for someone in elementary school.  When you dislocate your knee a second time while coloring on the floor, you are scared.  Even at your age, you know coloring isn’t supposed to hurt.  You’ll be afraid to sleep…

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Finding My Brave

Finding My Brave

This past week I feel as if my bravery has really been put to the test. Due to my recent pain spike, my treatment plan was adjusted and my pain medication was increased to 100mg every 4 hours (or 3x a day) and Tylenol as needed.  My previous dose (100mg 2x/day) did not leave me with many side effects, but this new dose caused a lot problems.  I would take it around 4pm and by 6pm it was difficult to…

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Fighting Through the Flares

Fighting Through the Flares

“Fans, for the past two weeks you have been reading about the bad break I got. Yet today I consider myself the luckiest man on the face of this earth.”  – Lou Gehrig in his “Farewell to Baseball Address” I have been struggling health-wise with the transition back to college from winter break, but for some reason Lou Gehrig’s speech keeps coming to mind in the midst of these struggles. It’s easy to get stuck in a rut of negative…

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Strength: Redefined

Strength: Redefined

I strive to be strong.  I love being active and find joy in pursuing physical activity.  As a result, the main definition of strength I connected with was about having increased physical power. This kind of strength is visible and something everyone can understand. It’s what every athlete strives to be. However, life with Ehlers-Danlos Syndrome doesn’t always let me be the type of strong I want to be.  I have athletic aspirations that I am not certain my physical…

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Smiling Through the Rain

Smiling Through the Rain

2016 did not go as planned.  I’m learning to understand this is okay, but getting to this point has not been easy. Although I wouldn’t put this past year in my “top 10 list”, there were still some incredible moments. I joined MDA Team Momentum, ran a half-marathon and raised over $3,000 for the Muscular Dystrophy Association.  I volunteered for an amazing week at MDA Summer Camp.  I bought a new road bike.  I completed my first triathlon.  I visited…

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